8/17: Bob and I got the kids going with school work, then we took a walk to check out potential dinner spots. We stopped at the grocery, then home for a late lunch and more school work. Bob and I walked to a nearby Prosecco festival, then home for HH in the backyard garden and walk to the Copper Pig for a laidback pub dinner.
8/19: First Monday of school! The kids had their first teacher call - all went well - this online learning will be a journey. They technically started school last Thursday, and already did a fair amount of work through the weekend for things due today. Bob and I wondered if they would’ve had homework the first weekend if we were at home in traditional school? We hadn’t thought of it, but we thought ‘I wonder if they might actually learn more in this setting vs usual school?’ We’ll see!
Our days have started with family exercise, either Apple Fitness in the basement or a run outside. Then the kids start school at 9. We eat lunch together and enjoy ping pong during school breaks. This has been one of my favorite things about our current place - the large basement area for exercise and all of us enjoying a lot of ping pong!
Bob had a call with Dr. Kleopas, Dr. Gray, Dr. Sue Bruhn (the CEO of the CMTA), and a member of the FDA to review the gene therapy proposal that Dr. Gray had submitted. The FDA said that our path for gene therapy was approved with no additional steps required. This is a HUGE positive step! Sue called it a Home Run - she said she has never had a more positive meeting with the FDA! Now the steps that need to be taken to reach the goal of treating the first 8 patients is clear!
These have been some interesting days for us. The kids are doing their schoolwork for most of the day, and we had intentionally slowed our travel down for this (we are now in our friend's house for 2 weeks while they are coincidentally in CA for 2 weeks!). This means we’re not packing up our backpacks in the morning to spend the day out exploring, and returning in the evening to shower, sleep, and repeat. Without the hustle that we’ve become accustomed to, and with the kids in school, we have had extra time to look ahead in our trip timeline, and have also been evaluating the future trip as a whole.
Some of our questions these days:
Will online school be a good fit? Can the kids complete their work each day early enough for us to explore a bit in the afternoon? Or can they get their weeks work completed by Thursday so we can explore all day Friday? We have to leave the Schengen area for about 45 days before we could enter again for another 90 day stay. Where should we go? Turkey, Montenegro, Bosnia, Thailand?
Bob and I have enjoyed our walks discussing these questions, and I have felt an overwhelming feeling of confidence that we will make the best decisions for our family as more information from each day comes to us. That is how this trip has gone: Bob has planned our time/activities/travel so incredibly well so far, and as new information has come to us, we have tweaked and adjusted our future travel plans. We flexed and changed our plans when we learned more and more about the visa process, and when the kids started school.
8/21 - 8/25: I travelled back to Wisconsin for Alyssa and Thomas’s wedding. I sat in the middle seat, and ended up having a wonderful conversation with a woman next to me, which made the time pass quickly. We talked about a lot of real topics, including meditation and psychic mediums. One thing she said that I keep reminiscing about is: “what are you hoping she’ll tell you that you don’t already know?”
My parents picked me up at O’Hare, and I loved those hugs! I arrived home to a package from our friends Eric and Jodi Kyler waiting for me - it was a bracelet that I designed after Karl died that Jodi made for me (she’s a jeweler). I didn’t know it would be there, and that day (8/21) was Karl’s birthday. It was a wonderful moment to open the surprise package, with my parents, on Karl’s birthday.
It was a wonderful 4 days at my parent’s house - great family time and amazing weather that allowed me to exercise every morning and enjoy their beautiful flowers in their yard.
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59 years of marriage ❤️ |
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Chinatown |
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Buckingham palace |
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Charcot likes the Palace! |
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Bob took Simone out for a daddy - daughter date |
8/26: I arrived back in London at 0930 after sleeping on the flight (I moved into 2 empty seats so room to stretch out!) I easily took the tube to a bus to get back to the Sander’s house - this is one thing that I love about Europe - the awesome public transportation that makes it so easy to get around!
Bob and I enjoyed a coffee at a place Victoria recommended, and we went out to a local pub that specializes in Thai food!
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Love this tiny car! |